Showing posts with label perceptions about autism. Show all posts
Showing posts with label perceptions about autism. Show all posts
Wednesday, August 11, 2010
Don't cure me....cuz I'm not sick
The biggest issue I have with organizations like Autism Speaks is their persistent push for a "cure." If autism were like measles, or beriberi, or AIDS, I'd say, heck yeah, let's find a cure. Because those diseases kill people. But autism isn't a disease. It's a disorder, it's problematic, it's an interference and it's devastating in its own way...but it's not a disease, like pregnancy is not a disease, like being black is not a disease, or gay, or short. It's a status, it's an immutable, but it won't slice your life expectancy in half. Herein lies the rub; I think that the well-meaning, well-connected, but ill-read people at AS think that if we just...I don't know, do what? Tweak a gene? Electroshock a brain? Inject a protein?...that the autism will all but disappear. Isn't that what we all want? For it to go away? I do not. I posit that the differences in children with autism are so valuable, so fundamentally necessary to how society regards itself as masses of cognitive entities, that eliminating the autistic is a disservice to us all. We need to see that difference is important. Variance has value. I don't want autism to be erased from my child if it means that she is no longer the child I know and love. I think a better use of resources is for therapy to bring those children who are so impaired as to be unable to manage their lives independently into the fray of functional, the realm of workable, the world of welcome. We need to alter our view of what it means to be essential to the larger culture. It isn't being perfect, intact, "normal." It's offering counterpoint, demonstrating tolerance, and offering appreciation for those who do not move through life in lockstep with the rest of us. My kid's not broke. Don't ask me to fix her.
Labels:
ASD,
autism speaks,
perceptions about autism
Monday, July 21, 2008
Unfortunately, not unusual.
http://www.msnbc.msn.com/id/25788692/
This guy unfortunately has a world view of ASD that a lot of people have. Some of them are in my own family. At least Savage says it out loud so people know he's an idiot. People I know just say it behind my back.
This guy unfortunately has a world view of ASD that a lot of people have. Some of them are in my own family. At least Savage says it out loud so people know he's an idiot. People I know just say it behind my back.
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